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hemophilianewstoday
24 年
Hot news: It’s the story of the birthday bruise
With a touch of humor about the "hot news," columnist Alliah Czarielle's husband handles the dramatic consequences of a ...
hemophilianewstoday
6 天
Metagenomi aiming for clinical trials of gene-editing therapy in 2026
Metagenomi says it hopes to start clinical trials next year to test MGX-001, its gene-editing therapy candidate for ...
hemophilianewstoday
3 天
First hemophilia B patients in Denmark treated with Hemgenix
For the first time in Denmark, people with hemophilia B have been treated with the gene therapy Hemgenix (etranacogene ...
hemophilianewstoday
10 天
Be Bio raises $92M to advance hemophilia B treatment BE-101
Be Biopharma has raised $92 million to support the first-in-human Phase 1/2 trial of BE-101, which is made to lower bleeding ...
hemophilianewstoday
17 天
2 new US patients given hemophilia B gene therapy Hemgenix: Reports
Two hemophilia patients in the U.S. who struggled for years with bleeds have been given Hemgenix, the first gene therapy ...
hemophilianewstoday
3 天
Lessons I’ve learned about preparing for emergencies and evacuations
Columnist Jennifer Lynne, a veteran of Florida hurricanes, offers advice for those with bleeding disorders should evacuations be necessary.
hemophilianewstoday
4 天
A program focused on empowering parents helped us early on
Columnist Joe MacDonald reflects on how the Parents Empowering Parents program helped him and his wife manage their son's hemophilia.
hemophilianewstoday
4 天
California doctor’s license law creates unfair burden
Columnist G Shellye Horowitz explains why she joined a federal lawsuit against a California law requiring licensing for out-of-state doctors.
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